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by Rachel Simon

The Arc of Northern Virginia with Lucy Beadnell

(March 20, 2019) Catherine Read interviews Lucy Beadnell, Director of Advocacy for the Arc of Northern Virginia. The Arc promotes and protects the human rights of people with intellectual and developmental disabilities, and actively supports their full inclusion and participation in the community throughout their lifetimes.

As the Director of Advocacy, Beadnell advocates for laws and policies that help protect and promote her clients’ safety and wellbeing, as well as give them the tools that they need to thrive. This year she has been particularly concerned about reports throughout the nation that those with disabilities have been targets of sexual abuse. She aims to use these horrific stories to educate the public about how to be proactive in order to avoid having their loved ones become a victim.

The Arc has worked with social workers and counselors to produce a variety of trainings, webinars and toolkits designed to help parents and caregivers give their loved ones the tools that they need to become “tough targets”. Beadnell explains that although this may be a tough topic for parents and caregivers to discuss, that having a developmentally appropriate conversation about appropriate and inappropriate behavior is necessary to keep their loved ones safe. These resource tools give them the appropriate language and sets the framework for conversations.

They recommend taking everyday opportunities to raise awareness for things like understanding the proper names for various body parts, understanding why it is inappropriate to keep a secret if someone asks them to do so, who is a safe person to talk to, and why sex is an expression of love. It is important for caregivers and parents to understand and accept that as their loved ones age, that they will indeed have a desire for a sexual relationship. This should prompt them to educate and talk to their loved ones so that they can advocate for themselves, and not be taken advantage of.

Additionally, the Arc has been working with the Council Of Governments on some technology tools to help people who are on the Autism spectrum, or are nonverbal, communicate with those around them in order to stay safe. There is an app called SafetyMate for smartphones and tablets that allow them to share what is happening if they cannot find the words.

Unfortunately, some people with disabilities can present in a way that looks different from what is actually happening. For people who repeat phrases with only a limited amount of words, or have trouble following commands quickly, it can be confusing to the police. This app allows people with disabilities to explain to the police what their situation is, and diffuse a situation so that everyone is on the same page.

Building on this concept, a new app called TravelMate is being used in Northern Virginia to help people with disabilities navigate public transportation. With a new grant from the Council Of Governments they are looking to roll it out to everyone within the area that uses the Metro system for public transit. Beadnell is excited to work collaboratively with her partners in the region to roll out this new initiative.

Lucy Beadnell Ar of NoVAAs Director of Advocacy, Beadnell works with legislators in the General Assembly to pass laws and advance policies that will help her clients. This year, they were able to score a big victory for patients with autism. Up until now, insurance companies were allowed to cap coverage of Applied Behavioral Therapy (ABA) to patients at the age of 10. This therapy has proven to significantly help patients with autism at all ages. This year, the Assembly passed a bill to require coverage of this treatment with no age limitation. This will help patients with autism reach their full potential and help reinforce the skills that they need to thrive at home and in the community.

Also on the legislative agenda is the request to fully fund the Priority 1 urgent waiver waiting list by FY 2020. They were able to secure funding this year for half of the list, and are hoping to take care of the remainder next year. Individuals who are on this priority list are assessed as needing services immediately by the Commonwealth’s own definition. The current system of funding has driven many of these people into crisis, a method that only winds up costing the commonwealth more money in both the short and long term. By addressing this priority list, they can begin to focus on people lower down on the waiting list, whose needs are less complex and less costly. Ultimately it will help make the system more efficient and will bring down costs.

There were a few disappointments this year. A bill that was submitted to ensure that students with disabilities are entitled the developmentally appropriate Family and Life Education died in committee. In light of stories of abuse, Beadnell firmly believes that this bill is critical to helping to keep students safe. Additionally, a request was put in for an increase in what Medicare pays nurses for caring for patients with disabilities. Often times these patients have complex medical needs, and due to the low rate of reimbursement, many families cannot afford to keep their loved ones at home with them, forcing the families to put them in nursing homes. Sadly, Virginia is one of the most underfunded states for people with disabilities. The Arc will continue to push for these measures.

Lastly, one of the other key initiatives that the Arc has been working on with Del. Kaye Kory is a bill that allows for Supported Decision Making. This model would be an alternative to the Guardianship model that currently exists. It would allow for a person with intellectual disabilities be surrounded by a team of people who are designed to help advise them and guide them in the decision making process. The fact is that the current Guardianship model does not give all of the protections that it was originally designed to do. This model also offers individuals a sense of agency in the decision making process, and the opportunity to work on thinking through problems and come to solutions.

The Arc will be holding its first Benefit Breakfast on Friday March 29th from 7:30-9:00am at the McLean Hilton in Tysons Corner, to help raise money to support all of the good work that they are doing.   To attend the breakfast, or simply support the organization with a donation, please visit their website. You can also follow them on Facebook and Twitter (@TheArcOfNova).

Filed Under: Blogging, TV Shows, Your Need to Know Tagged With: applied behavioral therapy for autism, ARC of Northern Virginia, Autism insurance coverage, Delegate Kaye Kory, FLE for students with disabilities, IDD Community, Intellectual Disability, Lucy Beadnell, Priority 1 Urgent Waiting List, SafetyMate, supported decision making, The Arc of Northern Virginia, TravelMate

by Rachel Simon

Delegate Kaye Kory on Your Need to Know

(Jan. 9, 2019) Catherine Read sits down with Delegate Kaye Kory (D-38) to discuss the upcoming legislative session in the Virginia General Assembly. Korey represents the Bailey’s Crossroads and surrounding neighborhoods in Fairfax County.

After a career in community organizing, Korey launched her political career as a member of the Fairfax County School Board starting in 2009. After serving on the board for 10 years, and having accomplished many of the things she set out to do, she challenged the party incumbent in a primary and was ultimately elected to the General Assembly in 2009. She was excited for the new challenge, and eager to represent her constituents in Richmond. She has always looked for common sense, practical solutions to problems she sees in the system.

Many of the bills that she files are the direct result of constituents who come to her with ideas, or complaints, with how specific issues are currently being handled. Working together with groups or individuals, Korey prides herself on learning the ins and outs of any specific problem, and working hard to find ways to solve it. She is well versed in the inner workings of the legislature, and is eager to get to work on behalf of her constituents in Richmond.

This year, Virginia could become the 38th and final state to ratify the federal Equal Rights Amendment (ERA). Korey was instrumental in raising a discussion about the ERA during last year’s session by working with her colleague Del. Sam Rasoul to start the discussion in the Privileges and Elections Committee. This helped to set the stage for the debate to happen in 2019. (Update: as of today, the bill has passed through the Senate, and will be sent to the House).

In addition to the ERA, Korey is always looking for ways to advance issues surrounding education, as it is an area near and dear to her heart. Bringing her experience as a school board member in the largest school division in Virginia, she is intimately aware of the challenges faced by teachers and administrators alike, and is always looking for opportunities to make things better.

In the 2018 session, one of her signature bills was HB 83. This bill requires that correctional facilities in Virginia provide menstrual hygiene products to inmates at no cost. The bill passed unanimously, and Korey has dedicated a great deal of time over the past year working with the Department of Corrections to ensure that the language on their books accurately represents the intent of the bill. She has diligently traveled the state to meet with corrections officers, and to personally see the impact of her legislation.

All 140 seats in the General Assembly are up for grabs this November. While the Republicans still hold a slim majority in both the Senate (21-19) and the House (51-49), the makeup of these two bodies could look drastically different come January of 2020.

Filed Under: Blogging, TV Shows, Virginia, Your Need to Know Tagged With: Delegate Kaye Kory, Delegate Sam Rasoul, Equal Rights Amendment, ERA, HB 83, Menstrual Equity

by Rachel Simon

Menstrual Equity Update with Holly Siebold

(Dec. 10, 2018) Catherine Read interviews Holly Seibold (President) and Shaheen Khurana (Legislative Affairs) of BRAWS (Bringing Resources and Aid to Women’s Shelters), along with Del. Jennifer Boysko and FCPS School Board Member At-Large Karen Keys-Gamarra regarding the issue of menstrual equity.

Catherine first speaks with Holly Siebold about the term “menstrual equity” and why it is on the radar of so many people in the Commonwealth of Virginia. Holly became involved with this issue several years ago, when she founded the organization Bringing Resources and Aid to Women in Shelters (BRAWS). At the time, her goal was to get menstrual supplies to low-income women who did not have the resources to purchase them.

As Siebold has learned more and more about this issue, she has championed the idea of bringing full access of these products to all women in need.  She specifically mentions that the place where the most work needs to be done is in the public schools. In her travels throughout Northern Virginia she has found that 30% of the girls surveyed have had to miss school to manage their period. This could be for something as simple as not having a tampon or pad at school, or being forced to go home to get products or to change clothes. This puts girls at a tremendous disadvantage, especially those who come from low-income households who do not have the necessary resources to deal with these challenges.

In addition to the fact that they are forced to miss school, many young women feel shame and stigma about having to manage their menstruation. Schools are not equipped with products to help the girls, and students might not want to tell the nurse or counselor what their problems are due to shame, anger or embarrassment. Part of Holly’s work is to help change this dynamic, and to change how adults approach and talk about menstruation. BRAWS also sponsors a teen council to help de-stigmatize periods and elevate this issue, as well as advocate and raise funds for those in need.

Holly Seibold In the second segment Catherine speaks with Shaheen Khurana, the legislative affairs specialist at BRAWS working on menstrual equity bills in the Virginia General Assembly. Last year, BRAWS successfully worked with Del. Kaye Kory to pass HB 83, a bill directing all correctional facilities in Virginia to make menstrual products readily available, and free of charge, to all inmates who request the products. In the past there was a wide disparity throughout the state run correctional facilities on how these requests were handled. Many inmates were required to purchase the products as the store, but could not afford to buy them. This legislation ensures that all women have access to the sanitary supplies that they need on a monthly basis.

Del. Jennifer Boysko joins Catherine in the following segment to discuss her work to bring the Dignity Bills to the floor of the chamber in 2019. These bills are designed to abolish the sales tax charged on menstrual products to help ease the burden of the cost of these goods.   The first bill introduced last year would have removed the tax only during the sales tax holiday, which is designed and marketed as “back to school” sales tax relief. Currently, everything from wedding dresses to candy are included as part of this tax relief program. The second bill would have removed sales tax permanently on all purchases throughout the year.

Both bills were killed in committee last year, but Boysko hopes to have a better outcome with these bills during the 2019 session. As menstrual equity is elevated in the state and national discourse, she believes that they can make progress. To date, fifteen states have already removed sales tax from these products, and NY, CA and IL have all required their school systems to provide menstrual products free of charge to students in need.

Catherine’s final guest is Karen Keys-Gamarra, School Board Member at Large for Fairfax County Public Schools. She has successfully included support for menstrual products to be supplied to students who need them in the FCPS legislative package being sent to Richmond this year. Keys-Gamarra strongly believes that as the largest school division in the state, it is important to include this as a priority and be a leader on this issue. She notes that the school accreditation standards have recently been updated to include school absence as a factor. Based on the student surveys indicating that girls are missing classes due to not having access to menstrual products, she felt compelled to raise the issue. FCPS Superintendent Scott Braband has been directed to explore the scope, cost and impact that this request would have on the school system’s budget.

Filed Under: Inside Scoop, Menstrual Equity, TV Shows, Virginia, Women Tagged With: BRAWS, BRAWS Teen Council, Bringing Resources and Aid to Women's Shelters, Delegate Jennifer Boysko, Delegate Kaye Kory, Dignity Bill, FCPS School Board, HB 83, Holly Siebold, Karen Keys-Gamarra, Menstrual Equity, Shaheen Khurana

by Rachel Simon

Virginia Menstrual Equity – Holly Seibold of BRAWS

(Jan. 3, 2018) Catherine Read interviews Holly Siebold, founder of Bringing Resources and Aid to Women’s Shelters (BRAWS), and Shaheen Khurama, head of the BRAWS Advocacy Committee. They are a non-partisan coalition, composed of groups and individuals with interest in menstrual equity. They believe that access to safe menstrual products is a matter of human dignity and public health.

Shaheen KhuranaThe advocacy committee, notes Khurama, has a mission to support public policy initiatives that have three main objectives. First, they want to expand access to menstrual products in schools, women’s shelters and correctional facilities. Second, they aim to make menstrual products more affordable by making them tax-free or allowing the products to be included in Flexible Spending Accounts (FSA) Benefits, and by adding eligibility of these items for refundable tax credits. Lastly, they aim to make the products safer by requiring manufacturers to list the materials used in the products.

Author Jennifer Weiss-Wolf, in her book Periods Gone Public, coined the term “menstrual equity”, where she talks about the stigma of openly talking about menstrual cycles. She also notes that women and girls do not have equal opportunities for success in cultures throughout the world because of how they are treated or isolated during their menstrual cycles. This book caught on with female grassroots activists in the US. Although women don’t face many of the obvious problems that occur in other world cultures, female advocates did find parallels and wanted to start a grass roots movement to change the culture around menstrual cycles.

In an effort to educate girls about this issue, Seibold shares that BRAWS has started a teen leadership council, where girls from Elementary, Middle and High Schools come together and learn how to talk openly about periods. They are then ambassadors, as they return to their home schools and hold conversations about periods with their peers. BRAWS aims to educate the next generation and take away the stigma about periods, using proper terminology, as well as having free products available in bathrooms and clinics at schools. BRAWS has heard from girls who have had to leave school because they get their period and don’t have access to products to manage their menstruation. This is something that can and should be addressed.

In the upcoming Virginia Legislative session, there are three bills being introduced to address the goals of BRAWS. Del. Kaye Kory is introducing HB 83, which would require correctional facilities to provide feminine hygiene products free of charge to inmates. ( update: since the interview this bill has passed through both the House and the Senate and is awaiting signature from the Governor).

Del. Jennifer Boysko introduced two other bills designed to provide tax-free purchases of sanitary products, HB 24 and the complementary bill HB 25. HB 24 would make them permanently tax-free, and HB 25 would make products tax-free during the back to school tax-free holiday (update: both of these bills failed to make it out of the House).

The Virginia Menstrual Equity Coalition has brought together women’s advocacy groups from around the Commonwealth. These are not partisan groups, they are simply women from all across the state who want to advance the agenda of de-stigmatization of menstrual cycles and increased access to feminine hygiene products.   BRAWS encourages women to contact their legislators (state and federal) to help advance their goals to make these products safer and more affordable. The coalition is thrilled to have the support of Gov. Ralph Northam, and hopes that with his medical background he can help raise the profile of these issues.  On the Federal level, Rep. Grace Meng (D-NY) has legislation moving through Capitol Hill to require ingredient labeling for feminine hygiene products. You can follow the progress of all of this legislation on the BRAWS website and on the Facebook page of the Virginia Menstrual Equity Coalition.

Filed Under: Political, TV Shows, Virginia, Women, Your Need to Know Tagged With: BRAWS, BRAWS teen leadership council, Bringing Access to Women's Shelter, Delegate Jennifer Boysko, Delegate Kaye Kory, feminine hygiene, Flexible Spending Accounts, FSA, Governor of Virginia, Grace Meng, grass roots, HB 24, HB 25, HB 83, Holly Seibold, Jennifer Weiss-Wolf, menstrual cycles, Menstrual Equity, Periods, Periods Gone Public, Ralph Northam, Shaheen Khurana, tax free feminine hygiene, Virginia Menstrual Equity, Virginia Menstrual Equity Coalition, women

Catherine S. Read
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